About Us
The GNB1 Advocacy Group is a 501(c)(3) non-profit organization with public charity status. Our group is made up of passionate people- parents, caregivers, loved ones, doctors, and scientists- fighting for a better future for individuals affected by GNB1 syndrome. We are hopeful that, together, we'll find a treatment for our kids in our lifetimes.
Our Story
Although our group was formalized as a non-profit in 2024, we started as a Facebook group, joining forces with researchers studying GNB1 and sharing our stories with those who understood our unique journey.
Our Mission
Our mission is to unite families affected by GNB1, fostering a supportive community. We aim to raise awareness, provide a platform for parents to connect, share experiences, and access valuable resources. Through collaboration, we strive to empower and improve the lives of those impacted by GNB1.
The GNB1 Advocacy Group are proud members of and partner with the following organizations:
