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COMMUNITY
Resources
We are a non-profit organization focused on raising awareness, funding research, and supporting patients and their families. Our dedication and hard work is essential in improving the lives of those affected by this rare disease. We are proud to support these organizations and their important mission.
Non-Profit Organizations
A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
A global advocacy organization for rare disease patients and families, offering support and resources.
Equipment and Supplies
Bath Time
Car & Travel
Eating
Sensory PT Tools
Sitting
Sleeping
Standing
Stroller & Wheelchair
Walking
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