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COMMUNITY

Resources

We are a non-profit organization focused on raising awareness, funding research, and supporting patients and their families. Our dedication and hard work is essential in improving the lives of those affected by this rare disease. We are proud to support these organizations and their important mission.

Non-Profit Organizations

A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

A global advocacy organization for rare disease patients and families, offering support and resources.

Equipment and Supplies

Bath Time

Car & Travel

Eating

Sensory PT Tools

Sitting

Sleeping

Standing

Stroller & Wheelchair

Walking

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The GNB1 Advocacy Group is a 501(c)(3) public charity. Our tax identification number is 99-1719087.

© 2024 GNB1 Advocacy

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