First-Ever GNB1 Research Grants

July 15, 2025

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FOR IMMEDIATE RELEASE

 

The GNB1 Advocacy Group, Inc., together with our families and friends, is pleased to announce the first ever GNB1 Research Grant Applications.

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Over the past few years we have accomplished so much- we’ve established a formal 501(C)3 corporation and a Board of Directors, brought researchers together in collaboration, developed marketing and fundraising campaigns, launched a formal registry, and will be launching a formal natural history study in the next 30 days. Through our monthly meetings and our Facebook group, through WhatsApp, Facebook Messages, and text messages, we have connected parents worldwide to provide support and share experiences, tips, and invaluable information about what makes our kids unique, and how to help them live their best lives.

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This has all been made possible by the tireless efforts of the many parents, loved ones, and friends of people who have GNB1 Encephalopathy who have worked together, each giving of their time and their talents. Together, we are working for a better future for all our children. We thank the research scientists and clinicians who are helping us make this possible. We hope this will be the first of many opportunities for us to support research.​​​