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EVENTS

GNB1 Month & Day

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Hello GNB1 families, friends, and supporters!

 

We are SO excited that the very first GNB1 Awareness Month and Day is here! We’ll be celebrating all throughout April, with the big day on April 21 — and we want everyone to be part of it.

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To help make joining the celebration easy and fun, we’ve created a GNB1 Awareness Month & Day Celebration Kit filled with ideas and inspiration for ways you can participate during April and especially on April 21.​

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We’ve also used AI to translate the kit into Spanish, Italian, and French, and if your language isn’t included, feel free to translate it so even more people can join in. Be sure to download the kits below and look for ways to get involved!

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This year’s campaign theme is “Connected by GNB1,” beautifully created by a GNB1 parent — thank you for helping capture the incredible connection within our community.

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Our goal this April is to spread awareness of GNB1 and raise $50,000 to support research and our community. Every conversation, post, and effort helps more people learn about GNB1.

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Even the smallest action— a post, a share, a donation, can create real change. Together, our voices become a movement, and our awareness becomes power.​

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Please check out all of the ways that you can participate below! 

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Check out our Celebration Kit with lots of ideas and templates to help you celebrate and advocate in whatever way works best for you!

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English

Spanish

Italian

French​

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GNB1 DAY COMMUNITY VIDEO

Option 1: Send a Short Video

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  • Please record a short clip (10–20 seconds).

  • You can use one of the example scripts here, say it in your own language, or share your own message — whatever feels most natural to you. Just try to keep it between 10–20 seconds.

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Option 2: Send a Photo

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  • If you’d prefer not to record a video, you can send a photo instead, with your name and where you are from.

​​Script examples:
“Hi, we’re the [Family Name] family.
This is our child, who has GNB1.
We’re connected by GNB1 from [Country].
Happy GNB1 Day!”


“Hello from [Country].
Our family is connected by GNB1.
Happy GNB1 Day!”

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“Hi, we’re the [Family Name] family from [Country].
GNB1 connects our family to families around the world.
Happy GNB1 Day!”


“Hi, we’re the [Family Name] family.
Our family is connected by GNB1.
Sending love from [Country]!”

Follow us and join the movement:

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Follow and support our fellow GNB1 groups:

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When you post or share, please use these hashtags:

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#ConnectedByGNB1 

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#GNB1Awareness 

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#GNB1Month #GNB1Day 

#GNB1Syndrome 

 

#GNB1AdvocacyGroup

  • Facebook
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  • Youtube
  • Linkedin

Support our Givebutter Campaign 

We aim to raise $50,000 for advocacy and research!

Shop our GNB1 Advocacy Merch Store

Shop and share our Merch Store on Bonfire

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Thanks for submitting!

The GNB1 Advocacy Group is a 501(c)(3) public charity. Our tax identification number is 99-1719087.

© 2025 GNB1 Advocacy

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